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Tag Archives: lived-experience expert
PODCAST: Voice of the Patient
I had a chance to speak with David Reed for his new podcast, The Voice of the Patient. Dave is a humble but knowledgeable, thoughtful man who practices physiotherapy in North Carolina, USA. It was wonderful to engage in a … Continue reading →
Posted in Amazing People, Message, Progress, Uncategorized
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Tagged advocacy, chronic illness, Chronic Kidney Disease, Clinical Education, clinician, David Reed, dialysis machine, Fitness, gym, health, Karen NIcole Smith, Kingston General Hospital, lived-experience expert, patient, patient advocate, patient experience advisor, physiotherapy, podcast, Queen's University, The Voice of the Patient
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Home Dialysis Machine/System Transition: Part 3
NxStage ARRIVES!! A few days before I did my first dialysis treatment at home, my machine arrived. March 23rd. This was something I had been dreaming about for a long time. (I have known about and wanted to try NxStage … Continue reading →
Posted in Message, Musings, Progress, The Bigger Picture
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Tagged aggressive dialysis, Baxter, challenges, choice, chronic illness, Chronic Kidney Disease, collaboration, control, dialysis, dialysis company, dialysis machine, dialysis room, doctor, expert, Fresenius, health, hemodialysis, home dialysis, Home Hemodialysis, kidney disease, lived-experience expert, medical executive, medical team, nurse, NxStage, patient, quality of life, sick to fit, team, thrive
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Kingston General Hospital CEO (Leslee Thompson) Graciously cites my MESSAGE in essay . . .
Wanted to thank Leslee Thompson, the CEO of Kingston General Hospital, for citing me in an essay she co-wrote about patient engagement in healthcare ,for the December issue of Longwoods.com. Leslee co-authored the essay with Hugh McLeod, (CEO, Canadian Patient … Continue reading →
Posted in Amazing People, Message, Progress
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Tagged Canadian Patient Safety Institute, care, CEO, co-authored, experience, healthcare, home dialysis, Hugh McLeod, KGH, kidney disease, kidney transplant, Kingston General Hospital, Leslee Thompson, lived-experience expert, Longwoods.com, patient engagement, patient experience advisor, wellness
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The Lived-Experience Expert Title. . .
I consider myself a lived-experience medical expert. From my perspective everyone who’s experienced challenges in their health (who lived to tell) qualifies as a lived-experience expert. My experience with Chronic Kidney Disease and Heart Failure has given me a lot … Continue reading →
Posted in Message, Progress, The Bigger Picture
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Tagged advocacy, advocate best care, anti-rejection medication, assumptions, astronomy, benefit, book, cardiac arrest, carepartner, chemotherapy, Chronic Kidney Disease, clinician, collaborate, consult, cycler, executive, expert, expertise, fear, fellow patients, health, healthy, heart disease, high price, Home Hemodialysis, in-centre dialysis, kidney transplant, learned the hard way, lived-experience expert, manual, medical conditions, milestones, negotiating, new kidney, no confident, operations, out of control, patient centered medicine, patient experience advisor, patient voice, peace, peritoneal dialysis, perspective, practical, practice and policy, pre-dialysis, price, procedures, sick, speak, surgeon, tired, transplant list, value, voice KGH nothing about me without me, write
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karennicolesmith 