Tag Archives: experience

Hashtag #wearenotwaiting . . .

Saw this hashtag maybe a month ago and was elated. It was being used by patients like me. Although I did not see this as giving me permission to advocate at a new level, I certainly felt good to know … Continue reading

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Opening a NEW CHAPTER . . .

In the past I’ve made videos for this blog but they were pretty rehearsed – not off-the-cuff. Now I am trying something new . . . in preparation for a new blog/vlog that I am developing. Doing something more candid. … Continue reading

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Open Letter to my Diseases . . .

Dear Kidney Disease, Heart Disease, Hypertension, Anemia and friends . . . We’re cool, ultimately. Not because I am happy to live with you all but because I had to make peace with you, since we met (in my teenage … Continue reading

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Contributing to the Celebration of WORLD KIDNEY DAY!!!!

A few things to be thrilled about today . . . 1. It’s WORLD KIDNEY DAY!!! For me it’s an opportunity to reflect of the amazing progress that’s been made (and that is being made) to improve the lives of … Continue reading

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Approaching the Next Stage: Living with Kidney Failure and Dialysis . . .

Right now I’m at home on my dialysis machine. This is pretty typical for me, as I have done home hemodialysis for the last few years, but . . . this may be my last time on this particular machine. … Continue reading

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Kingston General Hospital CEO (Leslee Thompson) Graciously cites my MESSAGE in essay . . .

Wanted to thank Leslee Thompson, the CEO of Kingston General Hospital, for citing me in an essay she co-wrote about patient engagement in healthcare ,for the December issue of Longwoods.com. Leslee co-authored the essay with Hugh McLeod, (CEO, Canadian Patient … Continue reading

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