Tag Archives: fear

Hashtag #wearenotwaiting . . .

Saw this hashtag maybe a month ago and was elated. It was being used by patients like me. Although I did not see this as giving me permission to advocate at a new level, I certainly felt good to know … Continue reading

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Opening a NEW CHAPTER . . .

In the past I’ve made videos for this blog but they were pretty rehearsed – not off-the-cuff. Now I am trying something new . . . in preparation for a new blog/vlog that I am developing. Doing something more candid. … Continue reading

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Open Letter to my Diseases . . .

Dear Kidney Disease, Heart Disease, Hypertension, Anemia and friends . . . We’re cool, ultimately. Not because I am happy to live with you all but because I had to make peace with you, since we met (in my teenage … Continue reading

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The Lived-Experience Expert Title. . .

I consider myself a lived-experience medical expert. From my perspective everyone who’s experienced challenges in their health (who lived to tell) qualifies as a lived-experience expert. My experience with Chronic Kidney Disease and Heart Failure has given me a lot … Continue reading

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Trusting the LEAP . . .

In life we begin to hear and see certain messages over and over again. Right now the re-occurring message is to be fearless and just say, “yes”. Not only am I repeatedly seeing the message I am also being led … Continue reading

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Admitting I am SCARED . . .

Writing today about something that is difficult. It is difficult for me to talk about my fears. I am used to putting up a strong front and just saying, “I’m fine”. In this post, I have to admit, that I … Continue reading

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