Tag Archives: Home Hemodialysis

The Lived-Experience Expert Title. . .

I consider myself a lived-experience medical expert. From my perspective everyone who’s experienced challenges in their health (who lived to tell) qualifies as a lived-experience expert. My experience with Chronic Kidney Disease and Heart Failure has given me a lot … Continue reading

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Finding my WHY??

Finally inspired to write again . . . I discuss the concept of the WHY? Why are we pursuing our goals?? Then I details some action around my WHY. Working with some organizations that make a difference!!
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Proud to be part of it . . .

Received a link to download a copy of the Queen’s University, Department of Medicine Annual Report for 2013. I was so proud to see my nephrologists (kidney docs) featured, especially Dr. Ross Morton and Dr. Karen Yates. To see other … Continue reading

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Alone, Together . . .

My life experience has continually reminded me that life is a journey we take alone. (Not just death.) My Mom died when I was six so I’ve never taken relationships for granted.  I’ve always had friends – even people I … Continue reading

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Our Precarious BALANCE . . .

Once and I while I get a reminder of the real gravity of my health situation. I have a vascular access that I use to attach myself to my dialysis machine with. This access is currently infected. I have no … Continue reading

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The Dialysis SACRIFICE . . .

(This post could be 100 pages long, frankly. I have a lot of thoughts about the sacrifice I make to be healthy.) Let’s start by thinking about the human kidney. This is an organ that works 24 hours a day … Continue reading

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