Tag Archives: procedures

Open Letter to my Diseases . . .

Dear Kidney Disease, Heart Disease, Hypertension, Anemia and friends . . . We’re cool, ultimately. Not because I am happy to live with you all but because I had to make peace with you, since we met (in my teenage … Continue reading

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The Lived-Experience Expert Title. . .

I consider myself a lived-experience medical expert. From my perspective everyone who’s experienced challenges in their health (who lived to tell) qualifies as a lived-experience expert. My experience with Chronic Kidney Disease and Heart Failure has given me a lot … Continue reading

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Finding my “Notebook” . . .

A few days ago I found a lined notebook that my ex had brought to the hospital after I’d had my cardiac arrest. This notebook was in a black zippered portfolio between a stack of medical papers. Sheets with medical … Continue reading

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Light at the end of the dialysis tunnel . . .

Yesterday I took an early morning train between Kingston and Toronto. When I got to Union Station (in Toronto) I walked through the underground (cause it’s damn cold here in Canada), dropped my luggage off at my hotel and went … Continue reading

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