Tag Archives: support

Hashtag #wearenotwaiting . . .

Saw this hashtag maybe a month ago and was elated. It was being used by patients like me. Although I did not see this as giving me permission to advocate at a new level, I certainly felt good to know … Continue reading

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Opening a NEW CHAPTER . . .

In the past I’ve made videos for this blog but they were pretty rehearsed – not off-the-cuff. Now I am trying something new . . . in preparation for a new blog/vlog that I am developing. Doing something more candid. … Continue reading

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Open Letter to my Diseases . . .

Dear Kidney Disease, Heart Disease, Hypertension, Anemia and friends . . . We’re cool, ultimately. Not because I am happy to live with you all but because I had to make peace with you, since we met (in my teenage … Continue reading

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Open Letter to NxStage Tech Support Guy . . .

Wanted to share an experience I had with the NxStage technical support line. And what I would say to him if I knew who he were. Sometimes, because of my busy schedule, I am a little tired when I’m getting … Continue reading

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Moved to Tears by MEDIA LOVE . . .

It’s not often that a person has to eat his or her words. (I hope I got that expression right? I am famous for getting expressions wrong.) In the past I have said that the media doesn’t have much love … Continue reading

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Trusting the LEAP . . .

In life we begin to hear and see certain messages over and over again. Right now the re-occurring message is to be fearless and just say, “yes”. Not only am I repeatedly seeing the message I am also being led … Continue reading

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