Tag Archives: surgeon

Hashtag #wearenotwaiting . . .

Saw this hashtag maybe a month ago and was elated. It was being used by patients like me. Although I did not see this as giving me permission to advocate at a new level, I certainly felt good to know … Continue reading

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Open Letter to my Diseases . . .

Dear Kidney Disease, Heart Disease, Hypertension, Anemia and friends . . . We’re cool, ultimately. Not because I am happy to live with you all but because I had to make peace with you, since we met (in my teenage … Continue reading

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READING A Transplant Surgeon’s Journal . . .

It’s not often that you read or learn something that brings you a completely new perspective. I am reading a book called, “Breathless: A Transplant Surgeon’s Journal – A Tribute to the World’s First Successful Lung Transplants” by physician, Thomas … Continue reading

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The Lived-Experience Expert Title. . .

I consider myself a lived-experience medical expert. From my perspective everyone who’s experienced challenges in their health (who lived to tell) qualifies as a lived-experience expert. My experience with Chronic Kidney Disease and Heart Failure has given me a lot … Continue reading

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Admitting I am SCARED . . .

Writing today about something that is difficult. It is difficult for me to talk about my fears. I am used to putting up a strong front and just saying, “I’m fine”. In this post, I have to admit, that I … Continue reading

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Light at the end of the dialysis tunnel . . .

Yesterday I took an early morning train between Kingston and Toronto. When I got to Union Station (in Toronto) I walked through the underground (cause it’s damn cold here in Canada), dropped my luggage off at my hotel and went … Continue reading

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