Tag Archives: transplant list

The Lived-Experience Expert Title. . .

I consider myself a lived-experience medical expert. From my perspective everyone who’s experienced challenges in their health (who lived to tell) qualifies as a lived-experience expert. My experience with Chronic Kidney Disease and Heart Failure has given me a lot … Continue reading

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Light at the end of the dialysis tunnel . . .

Yesterday I took an early morning train between Kingston and Toronto. When I got to Union Station (in Toronto) I walked through the underground (cause it’s damn cold here in Canada), dropped my luggage off at my hotel and went … Continue reading

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One YEAR in . . . Why don’t I feel like celebrating??

My blog is one year old. I received a notification in late November.  I should know the exact date but I am horrible at remembering those type of things. The day I received the notification I felt proud to have been … Continue reading

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Hope . . .

Tomorrow I have an appointment with my nephrologist at St. Michael’s Hospital in the Pre-Transplant clinic. Needless to say . . . I AM NERVOUS. Not nervous enough to feel sick or have a headache or anything. It’s more like … Continue reading

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Mentally preparing for BAD NEWS . . .

I think in general I am an optimist.  I jump at opportunities. I try new things. I always figure that I can emerge at the other end of an opportunity relatively unscathed . . . or affected in a way … Continue reading

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