Tag Archives: work

Hashtag #wearenotwaiting . . .

Saw this hashtag maybe a month ago and was elated. It was being used by patients like me. Although I did not see this as giving me permission to advocate at a new level, I certainly felt good to know … Continue reading

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Opening a NEW CHAPTER . . .

In the past I’ve made videos for this blog but they were pretty rehearsed – not off-the-cuff. Now I am trying something new . . . in preparation for a new blog/vlog that I am developing. Doing something more candid. … Continue reading

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Dropping the “RACE” analogy . . .

Living with chronic illness, there is definitely a range of “days” that you live with. At its worst are the days where you’re in a coma – that’s a bad one. Or experiencing excruciating pain  . . . or riding … Continue reading

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In Praise of Snow Pants . . .

Part of being well, at this time in my life, is the work of keeping sane. Sounds so simple. *sarcasm* I really don’t take my sanity for granted. It is a lot to stick to an independent dialysis schedule and … Continue reading

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At the Risk of Sounding UNGRATEFUL . . .

This is probably going to come across in an ungrateful way but . . . I’m not 100% sure that I will have a better life with my upcoming kidney transplant. I know. I am confusing people. Right now, because … Continue reading

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A Book and it’s Lesson . . .

I am finishing up with a cook book project right now with Chris De La Rosa of CaribbeanPot.com. (I feel so blessed). Last week, in my role as “project manager” of the book, I looked over a final book file. … Continue reading

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