Category Archives: Amazing People

Talking to Drew Long (founder of Fiercegentleman.com) . . .

Posted on June 1, 2016 by kns544

I am learning that all roads (health, wealth, relationships, joy, etc.) involve a journey into one’s self first. One of Drew Long’s contribution to the world . . . is creating an amazing manifesto and life philosophy. Drew’s work has … Continue reading →

Posted in Amazing People, Message, Uncategorized | Tagged advocacy, Black America, chronic illness, Chronic Kidney Disease, Drew Long, Fierce Gentleman, Fierce Lady, horseback riding, Karen NIcole Smith, manifesto, medicine, patient centered care, philosphy, Race and Ethnic Relations, self-improvement, United States | Leave a comment

PODCAST: Voice of the Patient

Posted on April 20, 2016 by kns544

I had a chance to speak with David Reed for his new podcast, The Voice of the Patient. Dave is a humble but knowledgeable, thoughtful man who practices physiotherapy in North Carolina, USA. It was wonderful to engage in a … Continue reading →

Posted in Amazing People, Message, Progress, Uncategorized | Tagged advocacy, chronic illness, Chronic Kidney Disease, Clinical Education, clinician, David Reed, dialysis machine, Fitness, gym, health, Karen NIcole Smith, Kingston General Hospital, lived-experience expert, patient, patient advocate, patient experience advisor, physiotherapy, podcast, Queen's University, The Voice of the Patient | Leave a comment

“Patient As Provider” – Barry Smith Symposium . . .

Posted on October 1, 2015 by kns544

I was fortunate enough to be asked to be a speaker and panelist in the Barry Smith Symposium at Queen’s University a few weeks ago. It was an amazing experience. This is the second annual symposium, named about one of … Continue reading →

Posted in Amazing People, Message, The Bigger Picture | Tagged advocacy, advocate, Barry Smith, Barry Smith Symposium, Canada, Cardiology, CBC, CEO, chronic illness, Chronic Kidney Disease, defibrillator, dialysis, dialysis machine, doctor, doctors, Dr. Brian Goldman, Dr. Chris Simpson, Dr. Pike, health literacy, Karen NIcole Smith, Kingston, Kingston General Hospital, Leslee Thompson, medical school, patient as provider, patient perspective, provider, Queen's Univeristy, White Coat Black Arts | Leave a comment

Messages from a Powerful Interview with e-Patient Dave . . .

Posted on June 19, 2015 by kns544

Our attention span for watching videos has changed – it’s very low these days. So for me to suggest you watch a video over 30 minutes long . . . you know there has to be some real value here. … Continue reading →

Posted in Amazing People, Message, Uncategorized | Tagged advocacy, advocate, author, Blog, blogger, books, cancer surviver, chronic illness, Chronic Kidney Disease, Dave deBronkart, diagnosis, Dolores Jean Lavins Center for Humanities in Medicine, e-Patient Dave, Facing Death with Hope, Healing Words, in-patient TV channel, Inspiration, interview, keynote speaker, kidney cancer, Laugh Sing and Eat Like Pig, laughter, laughter as medicine, Let Patients Help, letter to your disease, Mayo Clinic, message, negative thinking, patient engagement advocate, quality of life, react, science, set the tone, speaker, value, video, words of wisdom | 1 Comment

What is PsychoNephrology? Interview with Kidney MD . . .

Posted on May 28, 2015 by kns544

Had the opportunity to meet a kidney doctor, named Dr. Gavril Hercz. He is a staff nephrologist at Humber River Hospital. An Associate Professor at the University of Toronto. And a member of the Canadian Psychoanalytic Society. He’s part of a … Continue reading →

Posted in Amazing People, Message, Progress, The Bigger Picture | Tagged adherence, anxiety, Associate Professor, balance, blood pressure, blood test result, Canadian Psychoanalytic Society, care-giver, chronic illness, Chronic Kidney Disease, CKD, clinician, communication, comorbility, concentration, coping, depression, dialogue, dialysis, dialysis transition unit, disease management, doctor, Dr. Gavril Hercz, education, emotion, emotional disturbance, emotional support, family, home dialysis, Humber River Hospital, kidney disease, kidney doctor, kidney MD, kidney medicine, machine, modality, nephrology, nephrology therapy, normal response, nurse, outcomes, patient, patient centered care, patient concerns, peer support, pharmacology, physical disease, psychonephrology, psychosocial, quality of life, self-management, sleep disturbances, social worker, staff burnout, staff nephrologist, technology, transition to dialysis, treatment, University of Toronto | Leave a comment

Open Letter to NxStage Tech Support Guy . . .

Posted on May 25, 2015 by kns544

Wanted to share an experience I had with the NxStage technical support line. And what I would say to him if I knew who he were. Sometimes, because of my busy schedule, I am a little tired when I’m getting … Continue reading →

Posted in Amazing People, Musings, Progress, The Bigger Picture | Tagged aggressive dialysis, balance, chronic illness, Chronic Kidney Disease, CKD, dialysis, dialysis experience, dialysis machine, dialysis schedule, fatigue, help line, home dialysis, Home Hemodialysis, independent dialysis, kidney disease, kind, knowlegdable, mistakes, NxStage, open letter, patient, peace of mind, phone, problem, support, tears, tech support, technical support, treatment | Leave a comment