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Tag Archives: Inspiration
I am not my Hair . . .
This video straddles both my health and my boundlesslife. My health has taught me more than anything else in my experience. Losing most of my hair will NOT prevent me from being happy and from enjoying my life. #iambiggerthanmyillness #iamnotmyhair … Continue reading →
Posted in Message, Musings, The Bigger Picture, Uncategorized
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Tagged balance, black hair, boundlesslife, Cathy Smith, chronic illness, Chronic Kidney Disease, dialysis, dialysis machine, hair loss, hemodialysis, Inspiration, Karen NIcole Smith, kidney disease, kidney transplant, Life, quality of life, transplant
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Hashtag #wearenotwaiting . . .
Saw this hashtag maybe a month ago and was elated. It was being used by patients like me. Although I did not see this as giving me permission to advocate at a new level, I certainly felt good to know … Continue reading →
Posted in Message, Musings, Progress, The Bigger Picture
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Tagged 9 to 5 vs. 24 hours, advocacy, advocate, bureacracy, Canada, chronic illness, Chronic Kidney Disease, clinicians, control, death, defibrillator, dialysis, dialysis machine, dialysis schedule, doctor, doctors, empowered patients, energy, exercise, experience, family, fear, friends, goals, gym, Gym Schedule, happy, hashtag, health, healthy, heart disease, hemodialysis, home dialysis, Home Hemodialysis, hope, hospital, illness, Inspiration, journey, kidney, kidney disease, kidney failure, kidney transplant, Kingston, Lesson, Life, love, medicine, message, Mom, MPP, new kidney, nurse, NxStage, patient, patient experience advising, patient experience advisor, peace, personal, perspective, plan, progress, proud, public speaking, quality of life, research, sad, sick to fit journey, strong, success, support, surgeon, thankful, time, transplant, travel, we're not waiting, work, Writing
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Opening a NEW CHAPTER . . .
In the past I’ve made videos for this blog but they were pretty rehearsed – not off-the-cuff. Now I am trying something new . . . in preparation for a new blog/vlog that I am developing. Doing something more candid. … Continue reading →
Posted in Uncategorized
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Tagged advocacy, advocate, aggressive dialysis, aviator glasses, balance, bedroom, big hair don't care, black, Blog, camel, Canada, candid, challenge, chronic illness, Chronic Kidney Disease, cooking, defibrillator, dialysis, dialysis access, dialysis line, dialysis machine, dialysis schedule, DIY, DIY headboard, energy, exercise, experience, Facebook, fashion, fear, fit, Fitness, friends, gallery wall, goals, gold, GoPro 4 Silver, gym, Gym Schedule, happy, health, health progress, healthy, heart disease, hemodialysis, hobbies, home dialysis, Home Hemodialysis, hope, horseback riding, Inspiration, journey, kidney, kidney disease, kidney failure, kidney transplant, Kingston, Lesson, Life, lifestyle, love, meditation, message, new kidney, NxStage, operation, patient, patient experience advising, patient experience advisor, peace, personal, perspective, photos, plan, prayer, professional advancements, progress, proud, public speaking, quality of life, relationship, research, Sara Golish framed prints, sick to fit journey, spiritual, statement ring, staycation, strong, subscribe, success, support, thankful, time, transplant, travel, Twitter, video, white, white shorts, work, Writing, yoga, YouTube
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Messages from a Powerful Interview with e-Patient Dave . . .
Our attention span for watching videos has changed – it’s very low these days. So for me to suggest you watch a video over 30 minutes long . . . you know there has to be some real value here. … Continue reading →
Posted in Amazing People, Message, Uncategorized
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Tagged advocacy, advocate, author, Blog, blogger, books, cancer surviver, chronic illness, Chronic Kidney Disease, Dave deBronkart, diagnosis, Dolores Jean Lavins Center for Humanities in Medicine, e-Patient Dave, Facing Death with Hope, Healing Words, in-patient TV channel, Inspiration, interview, keynote speaker, kidney cancer, Laugh Sing and Eat Like Pig, laughter, laughter as medicine, Let Patients Help, letter to your disease, Mayo Clinic, message, negative thinking, patient engagement advocate, quality of life, react, science, set the tone, speaker, value, video, words of wisdom
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From Icon to Man: Nelson Mandela . . .
I try and read something first thing in the morning to inspire me. I probably only read about 10 minutes each morning but it sets a good tone for starting the day. (Some days, I must admit, I get side-track … Continue reading →
Posted in Amazing People
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Tagged book, bravery, conversations, Conversations with Myself, empathy, humility, icon, impact, Inspiration, letters, love, man, Nelson Mandela, priorities, sadness, vulnerability
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Finding my WHY??
Finally inspired to write again . . . I discuss the concept of the WHY? Why are we pursuing our goals?? Then I details some action around my WHY. Working with some organizations that make a difference!!
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Posted in Musings, Progress, The Bigger Picture
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Tagged 6am, Alberta, anecdotal, ask and you shall receive, authors, awareness, Big Bike, Canada, Canadian Physiotherapy Congress, Canadian Renal Rehabilitation Network, commitment, daunting, dialysis, dialysis units, Diana Hopskins-Roseel, donation letter, Dr. Trisha Parsons, eating well, ebb and flow, Edmonton, Education Session, educational video, energy, excited, experience, feed my soul, Fitness, fundraising, good reading, guest lecturer, guide, gym, heart and stroke foundation, heart failure, Home Hemodialysis, Hotel Dieu, independent dialysis, Inspiration, invigorating, Jason, journey, kidney failure, Kingston General Hospital, Life, life balance, Life Coach, life's purpose, manuscript, marketing course, me time, medical system, meditation, non-profit, outcomes, patient advocacy, patient engagement, patient experience advising, peak physical shape, person living with chronic illnesses, practice and policy, prayer, pre-dialysis, Providence Care, servant leader, share, sick to fit, speakers, spiritual journey, story, stroke, timing, University Hospitals Kingston Foundation, Wendy Pentland, WHY, Writing
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