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Tag Archives: journey
Vlogging about my Heart Function DECLINE. . .
I’ve known this information for a while . . . my heart function is lowering. We’re doing tests – Cardiology in Kingston and Toronto. Quite a few stress tests and ECGs and checking my defibrillator – as it logs my … Continue reading →
Posted in Message, The Bigger Picture
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Tagged advocacy, advocate, aggressive dialysis, balance, cardiac arrest, Cardiac Rehabilitation, chronic illness, Chronic Kidney Disease, defibrillator, dialysis, Diana Hopkins-Rosseel, exercise, Fitness, gym, Gym Schedule, health, healthy, heart disease, hemodialysis, home dialysis, Home Hemodialysis, journey, KGH, kidney, kidney disease, kidney failure, kidney transplant, Kingston General Hospital, love, new kidney, NxStage, patient, plan, quality of life, sick to fit journey, St. Michael's Hospital, strong, Toronto, transplant
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Hashtag #wearenotwaiting . . .
Saw this hashtag maybe a month ago and was elated. It was being used by patients like me. Although I did not see this as giving me permission to advocate at a new level, I certainly felt good to know … Continue reading →
Posted in Message, Musings, Progress, The Bigger Picture
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Tagged 9 to 5 vs. 24 hours, advocacy, advocate, bureacracy, Canada, chronic illness, Chronic Kidney Disease, clinicians, control, death, defibrillator, dialysis, dialysis machine, dialysis schedule, doctor, doctors, empowered patients, energy, exercise, experience, family, fear, friends, goals, gym, Gym Schedule, happy, hashtag, health, healthy, heart disease, hemodialysis, home dialysis, Home Hemodialysis, hope, hospital, illness, Inspiration, journey, kidney, kidney disease, kidney failure, kidney transplant, Kingston, Lesson, Life, love, medicine, message, Mom, MPP, new kidney, nurse, NxStage, patient, patient experience advising, patient experience advisor, peace, personal, perspective, plan, progress, proud, public speaking, quality of life, research, sad, sick to fit journey, strong, success, support, surgeon, thankful, time, transplant, travel, we're not waiting, work, Writing
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Opening a NEW CHAPTER . . .
In the past I’ve made videos for this blog but they were pretty rehearsed – not off-the-cuff. Now I am trying something new . . . in preparation for a new blog/vlog that I am developing. Doing something more candid. … Continue reading →
Posted in Uncategorized
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Tagged advocacy, advocate, aggressive dialysis, aviator glasses, balance, bedroom, big hair don't care, black, Blog, camel, Canada, candid, challenge, chronic illness, Chronic Kidney Disease, cooking, defibrillator, dialysis, dialysis access, dialysis line, dialysis machine, dialysis schedule, DIY, DIY headboard, energy, exercise, experience, Facebook, fashion, fear, fit, Fitness, friends, gallery wall, goals, gold, GoPro 4 Silver, gym, Gym Schedule, happy, health, health progress, healthy, heart disease, hemodialysis, hobbies, home dialysis, Home Hemodialysis, hope, horseback riding, Inspiration, journey, kidney, kidney disease, kidney failure, kidney transplant, Kingston, Lesson, Life, lifestyle, love, meditation, message, new kidney, NxStage, operation, patient, patient experience advising, patient experience advisor, peace, personal, perspective, photos, plan, prayer, professional advancements, progress, proud, public speaking, quality of life, relationship, research, Sara Golish framed prints, sick to fit journey, spiritual, statement ring, staycation, strong, subscribe, success, support, thankful, time, transplant, travel, Twitter, video, white, white shorts, work, Writing, yoga, YouTube
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Open Letter to my Diseases . . .
Dear Kidney Disease, Heart Disease, Hypertension, Anemia and friends . . . We’re cool, ultimately. Not because I am happy to live with you all but because I had to make peace with you, since we met (in my teenage … Continue reading →
Posted in Message, Musings, The Bigger Picture
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Tagged advocacy, advocate, aggressive dialysis, ambulance, anemia, anger, author, balance, better person, broken, cardiac arrest, Cardiac Rehabilitation, challenge, chronic illness, Chronic Kidney Disease, control, courage, Dave deBronkart, death, defibrillator, dialysis, dialysis machine, dialysis schedule, diseases, doctor, energy, ePatient Dave, exercise, experience, faith, family, fear, fearless, fight, financial, Fitness, frenemy, friends, goals, God, gym, gym rat, happy, health, healthy, heart disease, hemodialysis, home dialysis, Home Hemodialysis, hope, hospital, hypertension, inspired, journey, kidney, kidney disease, kidney failure, kidney transplant, Kingston General Hospital, laugh, Lesson, lessons, Life, limit, limittion, love, Lupus, meditation, message, Mom, new kidney, nothing for granted, nurse, NxStage, operation, orphan, patient, patient experience advising, patient experience advisor, peace, perspective, physical pain, plan, prayer, pregnancy, prioritize, procedures, professional-earning potential, progress, proud, public speaking, purpose, quality of life, real love, relationship, research, sad, sick to fit journey, spiritual, St. Michael's Hospital, strength, strengthened relationships, strong, success, support, surgeon, terror, thankful, time, Toronto, transplant, traumatic, travel, unease, universe, waiting room, well-ish, whole
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iObsession: The Relationship between Pre-Transplant Patient and iPhone . . .
It’s hard enough to have a healthy balance with technology, in 2014, without having my iPhone be my primary means of communication for my transplant centre. I know one day my phone will ring and it will be St. Michael’s … Continue reading →
Posted in Musings
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Tagged bigger fish to fry, call, Canada, care-giver, check out, clinician, communication, dialysis, faith, forum, freedom, good news, gym, higher-consciousness, important, iPhone, journey, kidney, kidney transplant, know, miracle, nervous, obsession, paranoid, perspective, phone charge, phone-free, progress, relationship, small price to pay, social media, spiritual, St. Michael's Hospital, surgeries, technology, timing, Toronto, transplant, transplant center, transplant coordinator
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A Spirit bigger than Mesothelioma . . .
I don’t usually do this but I am going to use this post to talk about a disease other than kidney disease (or heart disease) and the journey I am on. I receive a request from a husband, advocating on … Continue reading →
Posted in Amazing People, Message, Uncategorized
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Tagged 10 months to live, advocate, asbestos, commercial building, diagnosis, disease, exposure, factory, grace, heart disease, illness, improve, journey, kidney disease, loss, lung, mesothelioma, older home, overcome, rare case, relationship, respiratory cancer, school, second-hand, share, thrive, www.mesothelioma.com
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karennicolesmith 