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Tag Archives: death
Talking about Death . . .
It is a touchy subject. Period. I think I’m okay with talking about death because I’ve nearly died a few times. It is not scary to me because all of the times I’ve been sick enough to pass, it hasn’t … Continue reading →
Posted in Message, Musings, The Bigger Picture, Uncategorized
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Tagged advocacy, angiosarcoma, cancer, chronic illness, death, Faces of Health Care, Health Quality Ontario, heart failure, Karen NIcole Smith, kidney failure, Life, living, palliative care, report, thrive, truth
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Hashtag #wearenotwaiting . . .
Saw this hashtag maybe a month ago and was elated. It was being used by patients like me. Although I did not see this as giving me permission to advocate at a new level, I certainly felt good to know … Continue reading →
Posted in Message, Musings, Progress, The Bigger Picture
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Tagged 9 to 5 vs. 24 hours, advocacy, advocate, bureacracy, Canada, chronic illness, Chronic Kidney Disease, clinicians, control, death, defibrillator, dialysis, dialysis machine, dialysis schedule, doctor, doctors, empowered patients, energy, exercise, experience, family, fear, friends, goals, gym, Gym Schedule, happy, hashtag, health, healthy, heart disease, hemodialysis, home dialysis, Home Hemodialysis, hope, hospital, illness, Inspiration, journey, kidney, kidney disease, kidney failure, kidney transplant, Kingston, Lesson, Life, love, medicine, message, Mom, MPP, new kidney, nurse, NxStage, patient, patient experience advising, patient experience advisor, peace, personal, perspective, plan, progress, proud, public speaking, quality of life, research, sad, sick to fit journey, strong, success, support, surgeon, thankful, time, transplant, travel, we're not waiting, work, Writing
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Open Letter to my Diseases . . .
Dear Kidney Disease, Heart Disease, Hypertension, Anemia and friends . . . We’re cool, ultimately. Not because I am happy to live with you all but because I had to make peace with you, since we met (in my teenage … Continue reading →
Posted in Message, Musings, The Bigger Picture
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Tagged advocacy, advocate, aggressive dialysis, ambulance, anemia, anger, author, balance, better person, broken, cardiac arrest, Cardiac Rehabilitation, challenge, chronic illness, Chronic Kidney Disease, control, courage, Dave deBronkart, death, defibrillator, dialysis, dialysis machine, dialysis schedule, diseases, doctor, energy, ePatient Dave, exercise, experience, faith, family, fear, fearless, fight, financial, Fitness, frenemy, friends, goals, God, gym, gym rat, happy, health, healthy, heart disease, hemodialysis, home dialysis, Home Hemodialysis, hope, hospital, hypertension, inspired, journey, kidney, kidney disease, kidney failure, kidney transplant, Kingston General Hospital, laugh, Lesson, lessons, Life, limit, limittion, love, Lupus, meditation, message, Mom, new kidney, nothing for granted, nurse, NxStage, operation, orphan, patient, patient experience advising, patient experience advisor, peace, perspective, physical pain, plan, prayer, pregnancy, prioritize, procedures, professional-earning potential, progress, proud, public speaking, purpose, quality of life, real love, relationship, research, sad, sick to fit journey, spiritual, St. Michael's Hospital, strength, strengthened relationships, strong, success, support, surgeon, terror, thankful, time, Toronto, transplant, traumatic, travel, unease, universe, waiting room, well-ish, whole
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Project Red Fashion Show Talk (Heart & Stroke) . . .
Short video recorded for Queen’s University‘s Project Red Charity Fashion Show few weeks ago. Here is the link to watch the video: (just over 3 minutes) https://youtu.be/SdCfGi_XtGs I was thrilled to have the opportunity to share my experience to help raise … Continue reading →
Posted in Message, The Bigger Picture
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Tagged advocacy, advocate, awareness, cardiac arrest, Cardiac Rehabilitation, death, defibrillator, dialysis, Diana Hopkins-Rosseel, fire fighters, medication, money, paramedics, Project Red, Project Red Charity Fashion Show, quality of life, Queen's Univeristy, research, university audience, video, YouTube
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4 Year Cardiac Arrest Anniversary . . .
Yesterday was the four year anniversary of my near fatal cardiac arrest. I took a day to reflect on all the good that’s happened since then. I reached out to friends and family who were there for me during that … Continue reading →
Posted in Message, Musings, Progress, The Bigger Picture
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Tagged a lot to be thankful for, anniversary, balance, cardiac arrest, chronic illness, Chronic Kidney Disease, death, defibrillator, dialysis, family, friends, good, kidney transplant, Life, looking forward, meditation, new kidney, pizza, presence, reading, reflection, saving my life, Sunday, thankful, wings, yoga
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Leaving you in the DARK . . .
Not sure why it’s so hard for me to share the darkest moments of my story? As I write or speak, I think of it as a tour I take you on . . . and for some reason in … Continue reading →
Posted in Message, Musings, Progress
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Tagged advocacy, advocate, balance, Ban Righ Centre, Blog, breakthrough, Canada, care-partner, chorus, coincidence, courage, death, dialysis schedule, difficult, discomfortn, embracing life, health, honest, kidney, Kingston, Lesson, light, memory, ON, overcoming, perspective, pity, positivity, Powerpoint, proud, Queen's University, redemption, reference, sad, snap-shots, social media, story, story-telling, talk, tour, transformation, transplant, uncomfortable, verse, video, worry
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