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Tag Archives: patient experience advisor
PODCAST: Voice of the Patient
I had a chance to speak with David Reed for his new podcast, The Voice of the Patient. Dave is a humble but knowledgeable, thoughtful man who practices physiotherapy in North Carolina, USA. It was wonderful to engage in a … Continue reading →
Posted in Amazing People, Message, Progress, Uncategorized
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Tagged advocacy, chronic illness, Chronic Kidney Disease, Clinical Education, clinician, David Reed, dialysis machine, Fitness, gym, health, Karen NIcole Smith, Kingston General Hospital, lived-experience expert, patient, patient advocate, patient experience advisor, physiotherapy, podcast, Queen's University, The Voice of the Patient
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www.facesofhealthcare.ca feature . . .
I want to share an amazing experience with you. I had the tremendous opportunity to be interviewed for a blog called, Facesofhealthcare.ca. Kind of a Humans of New York but about the people in Canadian healthcare. Graciously, Dr. Simpson, (a … Continue reading →
Posted in Message, Progress, The Bigger Picture, Uncategorized
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Tagged advocacy, advocate, angiosarcoma, balance, cancer, cardiac arrest, Cardiac Rehabilitation, chronic illness, Chronic Kidney Disease, death with dignity, dialysis, dialysis machine, Fitness, gym, health, heart disease, heart transplant, hemodialysis, inter-professional model, kidney transplant, medicine, open heart surgery, palliative care, patient experience advisor, quality of life, sarcoma, transplant
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Hashtag #wearenotwaiting . . .
Saw this hashtag maybe a month ago and was elated. It was being used by patients like me. Although I did not see this as giving me permission to advocate at a new level, I certainly felt good to know … Continue reading →
Posted in Message, Musings, Progress, The Bigger Picture
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Tagged 9 to 5 vs. 24 hours, advocacy, advocate, bureacracy, Canada, chronic illness, Chronic Kidney Disease, clinicians, control, death, defibrillator, dialysis, dialysis machine, dialysis schedule, doctor, doctors, empowered patients, energy, exercise, experience, family, fear, friends, goals, gym, Gym Schedule, happy, hashtag, health, healthy, heart disease, hemodialysis, home dialysis, Home Hemodialysis, hope, hospital, illness, Inspiration, journey, kidney, kidney disease, kidney failure, kidney transplant, Kingston, Lesson, Life, love, medicine, message, Mom, MPP, new kidney, nurse, NxStage, patient, patient experience advising, patient experience advisor, peace, personal, perspective, plan, progress, proud, public speaking, quality of life, research, sad, sick to fit journey, strong, success, support, surgeon, thankful, time, transplant, travel, we're not waiting, work, Writing
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Opening a NEW CHAPTER . . .
In the past I’ve made videos for this blog but they were pretty rehearsed – not off-the-cuff. Now I am trying something new . . . in preparation for a new blog/vlog that I am developing. Doing something more candid. … Continue reading →
Posted in Uncategorized
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Tagged advocacy, advocate, aggressive dialysis, aviator glasses, balance, bedroom, big hair don't care, black, Blog, camel, Canada, candid, challenge, chronic illness, Chronic Kidney Disease, cooking, defibrillator, dialysis, dialysis access, dialysis line, dialysis machine, dialysis schedule, DIY, DIY headboard, energy, exercise, experience, Facebook, fashion, fear, fit, Fitness, friends, gallery wall, goals, gold, GoPro 4 Silver, gym, Gym Schedule, happy, health, health progress, healthy, heart disease, hemodialysis, hobbies, home dialysis, Home Hemodialysis, hope, horseback riding, Inspiration, journey, kidney, kidney disease, kidney failure, kidney transplant, Kingston, Lesson, Life, lifestyle, love, meditation, message, new kidney, NxStage, operation, patient, patient experience advising, patient experience advisor, peace, personal, perspective, photos, plan, prayer, professional advancements, progress, proud, public speaking, quality of life, relationship, research, Sara Golish framed prints, sick to fit journey, spiritual, statement ring, staycation, strong, subscribe, success, support, thankful, time, transplant, travel, Twitter, video, white, white shorts, work, Writing, yoga, YouTube
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Open Letter to my Diseases . . .
Dear Kidney Disease, Heart Disease, Hypertension, Anemia and friends . . . We’re cool, ultimately. Not because I am happy to live with you all but because I had to make peace with you, since we met (in my teenage … Continue reading →
Posted in Message, Musings, The Bigger Picture
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Tagged advocacy, advocate, aggressive dialysis, ambulance, anemia, anger, author, balance, better person, broken, cardiac arrest, Cardiac Rehabilitation, challenge, chronic illness, Chronic Kidney Disease, control, courage, Dave deBronkart, death, defibrillator, dialysis, dialysis machine, dialysis schedule, diseases, doctor, energy, ePatient Dave, exercise, experience, faith, family, fear, fearless, fight, financial, Fitness, frenemy, friends, goals, God, gym, gym rat, happy, health, healthy, heart disease, hemodialysis, home dialysis, Home Hemodialysis, hope, hospital, hypertension, inspired, journey, kidney, kidney disease, kidney failure, kidney transplant, Kingston General Hospital, laugh, Lesson, lessons, Life, limit, limittion, love, Lupus, meditation, message, Mom, new kidney, nothing for granted, nurse, NxStage, operation, orphan, patient, patient experience advising, patient experience advisor, peace, perspective, physical pain, plan, prayer, pregnancy, prioritize, procedures, professional-earning potential, progress, proud, public speaking, purpose, quality of life, real love, relationship, research, sad, sick to fit journey, spiritual, St. Michael's Hospital, strength, strengthened relationships, strong, success, support, surgeon, terror, thankful, time, Toronto, transplant, traumatic, travel, unease, universe, waiting room, well-ish, whole
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Kingston General Hospital CEO (Leslee Thompson) Graciously cites my MESSAGE in essay . . .
Wanted to thank Leslee Thompson, the CEO of Kingston General Hospital, for citing me in an essay she co-wrote about patient engagement in healthcare ,for the December issue of Longwoods.com. Leslee co-authored the essay with Hugh McLeod, (CEO, Canadian Patient … Continue reading →
Posted in Amazing People, Message, Progress
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Tagged Canadian Patient Safety Institute, care, CEO, co-authored, experience, healthcare, home dialysis, Hugh McLeod, KGH, kidney disease, kidney transplant, Kingston General Hospital, Leslee Thompson, lived-experience expert, Longwoods.com, patient engagement, patient experience advisor, wellness
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karennicolesmith 