Tag Archives: KGH

Vlogging about my Heart Function DECLINE. . .

Posted on July 13, 2015 by kns544

I’ve known this information for a while . . . my heart function is lowering. We’re doing tests – Cardiology in Kingston and Toronto. Quite a few stress tests and ECGs and checking my defibrillator – as it logs my … Continue reading →

Posted in Message, The Bigger Picture | Tagged advocacy, advocate, aggressive dialysis, balance, cardiac arrest, Cardiac Rehabilitation, chronic illness, Chronic Kidney Disease, defibrillator, dialysis, Diana Hopkins-Rosseel, exercise, Fitness, gym, Gym Schedule, health, healthy, heart disease, hemodialysis, home dialysis, Home Hemodialysis, journey, KGH, kidney, kidney disease, kidney failure, kidney transplant, Kingston General Hospital, love, new kidney, NxStage, patient, plan, quality of life, sick to fit journey, St. Michael's Hospital, strong, Toronto, transplant | Leave a comment

Kingston General Hospital CEO (Leslee Thompson) Graciously cites my MESSAGE in essay . . .

Posted on December 15, 2014 by kns544

Wanted to thank Leslee Thompson, the CEO of Kingston General Hospital, for citing me in an essay she co-wrote about patient engagement in healthcare ,for the December issue of Longwoods.com. Leslee co-authored the essay with Hugh McLeod, (CEO, Canadian Patient … Continue reading →

Posted in Amazing People, Message, Progress | Tagged Canadian Patient Safety Institute, care, CEO, co-authored, experience, healthcare, home dialysis, Hugh McLeod, KGH, kidney disease, kidney transplant, Kingston General Hospital, Leslee Thompson, lived-experience expert, Longwoods.com, patient engagement, patient experience advisor, wellness | Leave a comment

Something Positive to Come Back For . . .

Posted on December 11, 2014 by kns544

Fingers crossed . . . but I may have the opportunity to try the new dialysis machines for the hospital in the new year. The new machines are the NxStage dialysis machines. Portable. Easier to set-up and use. Travel-friendly. (Google … Continue reading →

Posted in Message, Musings, Progress, The Bigger Picture | Tagged $$$, advocacy, advocate, aggressive dialysis, Atlanta, balance, burden, chronic illness, Chronic Kidney Disease, dialysis, dialysis machine, dialysis schedule, electric, Florida, guinea pig, Home Hemodialysis, hospital, KGH, kidney transplant, Kingston General Hospital, less stress, longer life, more time, NxStage, optimistic, patients, plumbing, portable, post-transplant, quality of life, set up, simple, third round, transplant, travel, treatment schedule, trial, trip | Leave a comment

My Relationship Status (with my hospital) has Changed to “In a Relationship” . . .

Posted on November 28, 2014 by kns544

In the 70’s there used to be cigarette ads with the slogan, “You’ve come a long way, baby”. I thought I’d borrow the slogan to use here. It’s one of those statements that can stop you in your tracks in … Continue reading →

Posted in Musings, Progress, The Bigger Picture | Tagged acquaintance, advocacy, advocate, appointment, care, cigarette ad, colleague, contribution, dialysis, dialysis machine, dialysis system, email, evolution, experience, fellow patients, friendship, future, future patients, guinea pig, heard, hemodialysis, Home Hemodialysis, hospital, included, interview, KGH, Kingston General Hospital, masters, nephrologist, NxStage, opinion, partnership, patient experience advisor, patient-centred care, relationship, research, valued | Leave a comment

Helping Represent Patient Experience Advisors and KGH in VIDEO . . .

Posted on November 17, 2014 by kns544

Proud to be part of a video created by the Ontario Hospital Association (OHA). This is an organization that’s helped shape and influence health care policy in Ontario. Many aspects of healthcare in this province (in Canada) were formed by the … Continue reading →

Posted in Message, Progress, The Bigger Picture | Tagged Canada, CEO, cost, healthcare, KGH, Kingston General Hospital, Leslee Thompson, OHA, Ontario, Ontario Hospital Association, Patient Experience, patient experience advising, patient experience advisor, policy, province, system, transformation, video | Leave a comment

I Spy HOPE on the horizon . . .

Posted on July 9, 2014 by kns544

There’s a new dialysis machine in town and I have a serious crush!! Continue reading →

Posted in Message, Progress, The Bigger Picture, Uncategorized | Tagged anxious, Canada, dialysis machine, electric. flexibility, healthcare, home dialysis, home patient use, hope, hospital, improve lives, infrastructure, KGH, Kingston General Hospital, months of training, NxStage, on-line message boards, patient perspective, peace of mind, peritoneal dialyze, plumping, reconceptualization, sales meeting, set up, simplicity, simplifies lives, travel, trouble-shooting, value, website, YouTube videos | Leave a comment