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Tag Archives: kidney failure
Talking about Death . . .
It is a touchy subject. Period. I think I’m okay with talking about death because I’ve nearly died a few times. It is not scary to me because all of the times I’ve been sick enough to pass, it hasn’t … Continue reading →
Posted in Message, Musings, The Bigger Picture, Uncategorized
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Tagged advocacy, angiosarcoma, cancer, chronic illness, death, Faces of Health Care, Health Quality Ontario, heart failure, Karen NIcole Smith, kidney failure, Life, living, palliative care, report, thrive, truth
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LAUGHTER MEDICINE . . .
Sometimes we are just guided towards doing the right things. A lot of times when I’m on the dialysis machine I will watch stand-up comedy shows. They are longer videos – to help pass time . . . and I … Continue reading →
Posted in Message, Musings, The Bigger Picture
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Tagged aggressive dialysis, Anatomy of an Illness, balance, belly laughter, Bill Burr, books, cassette, chronic illness, Chronic Kidney Disease, comedian, comedy, cure, Dave Chapelle, Dave deBronkart, Delirious, dialysis, dialysis machine, Eddie Murphy, emotions, Google, guide, healing, health, humour, Jamie Foxx, joy, kidney failure, laugh, laughter, laughter as medicine, laughter sessions, Louis C K, message, Norman Cousins, research, Russell Peters, science, stand-up, talk, time, traditional medicine, videos
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Vlogging about my Heart Function DECLINE. . .
I’ve known this information for a while . . . my heart function is lowering. We’re doing tests – Cardiology in Kingston and Toronto. Quite a few stress tests and ECGs and checking my defibrillator – as it logs my … Continue reading →
Posted in Message, The Bigger Picture
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Tagged advocacy, advocate, aggressive dialysis, balance, cardiac arrest, Cardiac Rehabilitation, chronic illness, Chronic Kidney Disease, defibrillator, dialysis, Diana Hopkins-Rosseel, exercise, Fitness, gym, Gym Schedule, health, healthy, heart disease, hemodialysis, home dialysis, Home Hemodialysis, journey, KGH, kidney, kidney disease, kidney failure, kidney transplant, Kingston General Hospital, love, new kidney, NxStage, patient, plan, quality of life, sick to fit journey, St. Michael's Hospital, strong, Toronto, transplant
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Hashtag #wearenotwaiting . . .
Saw this hashtag maybe a month ago and was elated. It was being used by patients like me. Although I did not see this as giving me permission to advocate at a new level, I certainly felt good to know … Continue reading →
Posted in Message, Musings, Progress, The Bigger Picture
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Tagged 9 to 5 vs. 24 hours, advocacy, advocate, bureacracy, Canada, chronic illness, Chronic Kidney Disease, clinicians, control, death, defibrillator, dialysis, dialysis machine, dialysis schedule, doctor, doctors, empowered patients, energy, exercise, experience, family, fear, friends, goals, gym, Gym Schedule, happy, hashtag, health, healthy, heart disease, hemodialysis, home dialysis, Home Hemodialysis, hope, hospital, illness, Inspiration, journey, kidney, kidney disease, kidney failure, kidney transplant, Kingston, Lesson, Life, love, medicine, message, Mom, MPP, new kidney, nurse, NxStage, patient, patient experience advising, patient experience advisor, peace, personal, perspective, plan, progress, proud, public speaking, quality of life, research, sad, sick to fit journey, strong, success, support, surgeon, thankful, time, transplant, travel, we're not waiting, work, Writing
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Opening a NEW CHAPTER . . .
In the past I’ve made videos for this blog but they were pretty rehearsed – not off-the-cuff. Now I am trying something new . . . in preparation for a new blog/vlog that I am developing. Doing something more candid. … Continue reading →
Posted in Uncategorized
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Tagged advocacy, advocate, aggressive dialysis, aviator glasses, balance, bedroom, big hair don't care, black, Blog, camel, Canada, candid, challenge, chronic illness, Chronic Kidney Disease, cooking, defibrillator, dialysis, dialysis access, dialysis line, dialysis machine, dialysis schedule, DIY, DIY headboard, energy, exercise, experience, Facebook, fashion, fear, fit, Fitness, friends, gallery wall, goals, gold, GoPro 4 Silver, gym, Gym Schedule, happy, health, health progress, healthy, heart disease, hemodialysis, hobbies, home dialysis, Home Hemodialysis, hope, horseback riding, Inspiration, journey, kidney, kidney disease, kidney failure, kidney transplant, Kingston, Lesson, Life, lifestyle, love, meditation, message, new kidney, NxStage, operation, patient, patient experience advising, patient experience advisor, peace, personal, perspective, photos, plan, prayer, professional advancements, progress, proud, public speaking, quality of life, relationship, research, Sara Golish framed prints, sick to fit journey, spiritual, statement ring, staycation, strong, subscribe, success, support, thankful, time, transplant, travel, Twitter, video, white, white shorts, work, Writing, yoga, YouTube
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Open Letter to my Diseases . . .
Dear Kidney Disease, Heart Disease, Hypertension, Anemia and friends . . . We’re cool, ultimately. Not because I am happy to live with you all but because I had to make peace with you, since we met (in my teenage … Continue reading →
Posted in Message, Musings, The Bigger Picture
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Tagged advocacy, advocate, aggressive dialysis, ambulance, anemia, anger, author, balance, better person, broken, cardiac arrest, Cardiac Rehabilitation, challenge, chronic illness, Chronic Kidney Disease, control, courage, Dave deBronkart, death, defibrillator, dialysis, dialysis machine, dialysis schedule, diseases, doctor, energy, ePatient Dave, exercise, experience, faith, family, fear, fearless, fight, financial, Fitness, frenemy, friends, goals, God, gym, gym rat, happy, health, healthy, heart disease, hemodialysis, home dialysis, Home Hemodialysis, hope, hospital, hypertension, inspired, journey, kidney, kidney disease, kidney failure, kidney transplant, Kingston General Hospital, laugh, Lesson, lessons, Life, limit, limittion, love, Lupus, meditation, message, Mom, new kidney, nothing for granted, nurse, NxStage, operation, orphan, patient, patient experience advising, patient experience advisor, peace, perspective, physical pain, plan, prayer, pregnancy, prioritize, procedures, professional-earning potential, progress, proud, public speaking, purpose, quality of life, real love, relationship, research, sad, sick to fit journey, spiritual, St. Michael's Hospital, strength, strengthened relationships, strong, success, support, surgeon, terror, thankful, time, Toronto, transplant, traumatic, travel, unease, universe, waiting room, well-ish, whole
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