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Tag Archives: pre-dialysis
The Lived-Experience Expert Title. . .
I consider myself a lived-experience medical expert. From my perspective everyone who’s experienced challenges in their health (who lived to tell) qualifies as a lived-experience expert. My experience with Chronic Kidney Disease and Heart Failure has given me a lot … Continue reading →
Posted in Message, Progress, The Bigger Picture
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Tagged advocacy, advocate best care, anti-rejection medication, assumptions, astronomy, benefit, book, cardiac arrest, carepartner, chemotherapy, Chronic Kidney Disease, clinician, collaborate, consult, cycler, executive, expert, expertise, fear, fellow patients, health, healthy, heart disease, high price, Home Hemodialysis, in-centre dialysis, kidney transplant, learned the hard way, lived-experience expert, manual, medical conditions, milestones, negotiating, new kidney, no confident, operations, out of control, patient centered medicine, patient experience advisor, patient voice, peace, peritoneal dialysis, perspective, practical, practice and policy, pre-dialysis, price, procedures, sick, speak, surgeon, tired, transplant list, value, voice KGH nothing about me without me, write
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Finding my WHY??
Finally inspired to write again . . . I discuss the concept of the WHY? Why are we pursuing our goals?? Then I details some action around my WHY. Working with some organizations that make a difference!!
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Posted in Musings, Progress, The Bigger Picture
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Tagged 6am, Alberta, anecdotal, ask and you shall receive, authors, awareness, Big Bike, Canada, Canadian Physiotherapy Congress, Canadian Renal Rehabilitation Network, commitment, daunting, dialysis, dialysis units, Diana Hopskins-Roseel, donation letter, Dr. Trisha Parsons, eating well, ebb and flow, Edmonton, Education Session, educational video, energy, excited, experience, feed my soul, Fitness, fundraising, good reading, guest lecturer, guide, gym, heart and stroke foundation, heart failure, Home Hemodialysis, Hotel Dieu, independent dialysis, Inspiration, invigorating, Jason, journey, kidney failure, Kingston General Hospital, Life, life balance, Life Coach, life's purpose, manuscript, marketing course, me time, medical system, meditation, non-profit, outcomes, patient advocacy, patient engagement, patient experience advising, peak physical shape, person living with chronic illnesses, practice and policy, prayer, pre-dialysis, Providence Care, servant leader, share, sick to fit, speakers, spiritual journey, story, stroke, timing, University Hospitals Kingston Foundation, Wendy Pentland, WHY, Writing
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karennicolesmith 